I learned today that she has to wear the heart/respiration monitor 24/7 as long as she has her feeding tube in. Honestly, having to put leads on her and carry a monitor in a bag over my shoulder with me everywhere we go (even just to the kitchen) is going to suck. It's ridiculous and I was so excited to NOT have cords and wires attached to her at all times. But I trust the doctors to know what is best for Gesina and I'll do it, begrudgingly. This does provide me with an even stronger incentive to get her to nurse and take the bottle though. I've also got to work on her sleeping hours. She truly has gotten day and night confused as she sleeps during the day and is up and fussy at night. I know she's the boss of me now but I just can't have that schedule! There are no windows in the NICU so I'm hoping the natural light "cycle" helps me win her over to my (and most of societies) sleep/wake cycle.
I wish the weather tomorrow wasn't scheduled to be so cold. Driving a baby home in the cold weather for an hour drive is not something I would prefer! Especially with a new-to-me heart/respiration monitor that may have a high number of false alarms AND knowing she is scheduled to eat at such stringent intervals. I'll have to be sure the leave the hospital at the optimal time to avoid the worst of the weather and work around feeding times. I assume I'll adjust the feeding schedule according to Gesina's needs but I won't be able to do that for a few days after I figure out Gesina's needs :-)
My baby is coming home! Life is good and my family will finally be together. No more hours on the roads in horrible winter roads just to see my baby. Tears of joy today... what an emotional journey so far!
So happy for you both! :D
ReplyDeleteJackie I cannot imagine how excited you are! I am excited and thought of nothing all day except this and I am only the grandma:) Just bundle her up and have the car warm and drive carefully:) You have a precious bundle therel love to you all
ReplyDeleteAwesome!! I know you're glowing, I would be:) We are so thankful that this part of the journey is almost over! Now on to holding, cuddling, learning and teaching:) It's amazing what we can overcome to reach a goal...It may be a rough few days, but OMGosh it will be so worth it! To be able to walk across a room to pick her up, instead of having that long drive, it will be an amazing thing for all of you. Like your mom said, bundle her up you'll be fine:) Just don't get in a hurry driving, especially in the kinda weather ya'll are having right now.
ReplyDeleteMaybe having her at home with ya'll she can finally get adjusted and be done with the feeding tube. Just hang in there...you've already survived so much...ya'll will get it all worked out. I know she has some issues most babies don't, but they aren't anything you can't manage. She's coming home...for now, that's enough:) I know this will fall on deaf ears...lol.....I know I couldn't do it either...but try to rest...sleep is even better, it'll make tomorrow morning get here all the faster! Congratulations Sweety, we're so very happy for all of you:)
A big step and very positive event in all your lives.
ReplyDeleteSo happy for you Jackie!
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