Gesina took her full feeding by bottle twice this morning and then had her feeding tube taken out. I got to try feeding her and while it took me much longer to get her fed than her main day nurse, we got it done. She saw the speech therapist too but only took 32 ml from her so at least it's not just me that struggles. I'm anxious to see how she does the rest of the night and tomorrow. I'm picking up pointers from the nurses that have worked with her as well. She has a problem organizing at first so we have a "training wheels" method we've made up. She takes a pacifier, gets going, then we switch to the bottle. This gets her started and she is usually good to go then.
Her EEG was the same as it's been all along; no active seizures but the potential for seizures is there. Tomorrow they test her blood to ensure the levels of seizure drugs in her system are at the appropriate levels. The most exciting news is the DOCTOR says that if she does well on the bottle, she can go home later this week (Thursday or Friday). If she still needs the feeding tube, I get trained on how to insert it and she goes home early next week (Tuesday). I'm so excited and nervous at the same time. I have a "Gesina's coming home" to-do list now. I don't think there is anything I can buy or do that will make me feel prepared but I'm looking forward to learning as I go. I can't imagine going shopping with Gesina but I'll do it if I need to!
Awesome! Another Very positive day! She's getting this feeding thing down...On the EEG...what are they "looking" for? I understand what is showing up is the "potential" for seizures? Are they hoping that shows up less in the EEG? Regardless, she's doin' really good:) And she'll be home soon! SHOPPING!!! That has to really make you feel closer too! Babies are fairly simple creatures. Oh yeah, the bells and whistles are great, but...diapers, some clothes, baby shampoo...lottsa love and cuddles....they're needs are simple:) You'll figure out the rest as you go along...we all do. You have lottsa help, family, friends, the NICU nurses:) You'll do fine. You'll have your moments of "what am I doin' wrong....?" Again, we all do...Play it by ear. Take it easy and use family, friends, Google, phones...lol....you'll be ok:) After all of this? You've got this:) By the time she's been home a week, you'll be an ole hand at it all:) As for shopping with her? You'll get used to it quickly!
ReplyDeleteToday is another step closer to her being home...! So excited for you and your families:) Just another day, maybe 3 and you'll be full time "operation mama"! Please don't try to take on too much. If you need help, Ask. There is NO shame in needing a little assistance:) Remember to document or save a few little things, she'll love hearing the "story of her" one day...:) Maybe start a special box, one to keep some "Gesina moments" in...like a continuous time capsule.
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