Wednesday, Day 7
I learned rule #1 in the NICU. It is very rare to make linear and continuous improvement, one has to embrace set-backs and not get discouraged or upset...This is fine thinking and all but it was very difficult to watch Gesina have seizures today. When I was there she was having a visible seizure about every 5 to 10 minutes. Needless to say, removing the "emergency inhaler" seizure medication is not the answer today. She is back on the fourth med and I don't know her status on the third one that was given at a lower dosage. So after my carrying on and being sad, we decided that Deuling girls fight for what they want and she is just where she was about 2 days ago. No big deal, we just keep on fighting. They did cancel her MRI/MRA/MRV because her seizures need to be under control to run those tests effectively. Now we just let her rest and stabilize again so we can go back to refining her seizure cocktail.
In the meantime, here is Gesina from last night's bath. She does have eyes!
we are all sending prayers to you and our little princess,,Stay strong and know a lot of people love you and are behind you
ReplyDeleteYa'll don't know us...but...we have mutual family & friends....We're thinkin' about ya'll daily, a lot of times every hour and we talk/hope/encourage Genisa the same. I know it isn't easy, we have friends who have been in similar spots. She's a beautiful baby! So glad she wants to wake to see/be with you! The whole family was excited to hear the latest updates:) Jut know there are many of us following your situation and hoping daily for any and all signs of improvement. You have Adrian and your family, your friends, Let them put a boot in your behind(shower, food-Yes, you DO need to eat, you need to produce milk, she NEEDS that;) We aren't giving up, none of us are and there are a LOT of us here pulling for ya'll;) We'll do all we can to get her home with ya'll, can't wait to see her in a Santa or Elf hat...:) B T K B J
ReplyDeletePS: I'm Beth McDonald("Durbin/Sagesmoon"), I was/am friends with Bruce and Louise. Terry and I are Aunt & Uncle to: Heather, Jamie, Dannie, Kim & Jarrod:)
ReplyDeleteLook at that head of hair! She is adorable! This is so nice to be able to see updates on her progress. We are all thinking of Gesina! (and Mom & Dad) She is absolutely one tough little lady! Sending positive thoughts!
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