Today was much better so thank you all for your words of encouragement. There were much needed and much appreciated.
Gesina had a busy day today. She had a hearing test (she passed!!), a visit with the physical therapist, and a visit with the speech therapist (still working on getting that bottle figured out). In the meantime, she snuggled with her momma for 2 hours!! When she was awake, she would look around and sometimes make the sour face. She could be talked out of the sour face though. I did get a little choked up when I had to leave for the night but I'm pretty sure these are good tears. Progress is being made, my baby girl has had a lot of good days awake and she is headed in the right direction. Saying anything positive still makes me a bit superstitious but I'm trying to fight that silly urge. She is doing well and that makes me happy. So I'm going to work on enjoying the happy!
For her treatment, she is going to get an EEG on Monday to determine what else they are going to do with her 2 remaining meds. That seems like a long time from now but I really do like this "taking it slow" approach to dealing with her seizure meds. The other baby from the same hospital who also had seizures went home today. I got his mom's contact information so we can keep in touch.
Courtesy of Amy, here is a photo that represents a milestone for Gesina... the day when the nurses have finally given up on her hair! We fondly refer to all messy, spiky hair as Gesina hair :-) I figure it will grow and the weight of it will pull it down. One nurse likes to style it into a mohawk which is a very amusing solution to the problem of "Gesina hair."
So very happy for ya'll:) My heart is bubbling over! As for the worrying thing....hmmmm....well....mine are almost 25 and almost 22...as independent as they are, as well grounded...worries are.....kinda in the job description...once ya'll are through this...there will be other things...believe me when I say, sometimes looking back, it's the smallest, silliest things that worried me the most. Of course back then...they were huge worries...lol.....welcome to mama-hood Sweet Lady:) You've overcome so much in a short amount of time. You've adjusted so very well and will continue too do so:) She's a Beautiful girl-child, Blessed, Cherished, Fought for, Cried for, and So Very Loved ... wishing you many, many more hours of cuddles and girl talk;)
ReplyDeletePS, Lovin' the "Rock the Hawk" hair:) Too cute;) Happy 3 weeks Gesina!
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