That poor child nearly gags on the amount of medicine I have to give her twice a day. I shouldn't say nearly as she does throw them up periodically leading me to give them to her all over again. You can imagine the chaos as she projectile vomits red, grape-flavored meds at me and I have to hold her down again to get her to take the meds a second time... only to have her decide she isn't having it, refuses to swallow and spits them all on to me. She is a feisty one but I can't even get "mad" at her because her strong will comes directly from me! Of course after all the meds drama, I get to do it all over again in 12 hours. Blah.
The GI doctor had me add more formula to Gesina's bottles to "up" the caloric value. So now if I give her a 4 ounces bottle, it has 4 scoops of formula and 4 tablespoons of oatmeal in it. If she doesn't gain weight now, I don't know what we'll do! I'm switching her back to regular formula too as my mom and I noticed that she started to vomit only after I switched to the hypoallergenic formula. I haven't told the GI doctor this yet but I can't have her throwing up all those meds which is what she was going to do now that we were doubling up her formula. Oh, and knock on wood, I THINK we may finally have her acid reflux under control. She is more calm than before so the incessant crying may really be coming to a close. I don't know what I'm going to do with her now that she is more awake and calm! I made her do tummy time Sunday night because she was already fussy. She was NOT happy about it so as I talked to her and tried to calm her, she rolled from tummy to back! She was so mad that she was put on her tummy that she didn't even notice the significance of what she had done but I knew. I haven't yet tried it again as I hate to "poke the bear".
To ensure the seizure didn't get us down, we went to the zoo on Friday. It was a great time with the whole family of me, Adrian and Gesina. She enjoyed it and didn't cry in the car or at the zoo. Yay for adventure day :-) Next up, NICU Developmental Clinic on Thursday which is an all day affair to gather baseline data on her development thus far. Also, the GI doctor thinks Gesina had a cold for the last blood draw as her white blood cell count and liver enzymes were a little elevated. SO, another blood draw on Friday. I don't get a break either as the week after that she gets immunization shots at her pediatrician appointment. At this point, I consider Gesina heroically well adjusted because if I had as many shots and syringes aimed at me, I'd be grouchy too! In the meantime, here's a pic I had put on Facebook. Enjoy her eyelashes...
What an encouraging post. I am so glad that the reflux issue may be solved. Regarding the seizure activity, med changes probably will have to be made periodically until she hopefully outgrows them. Funny she got mad when you put her on her belly, when we visited and she was grouchy I also put her on her stomach. I was amazed at how mad she got, the girl does have an attitude:) Funny she actually turned over and didn't know it. I bet she will do this every time you put her on her stomach, good exercise for her:). Love mom
ReplyDeleteAwesome update! okay...you still have some issues to work out, BUT Look At You!! Bein' the mom and all...:) Your mama is right, she'll do it more and more now...! And it IS a good thing:) You seem much more grounded. I know you still get frazzled, BIG DEAL. You're doin' it! We all get frazzled. We're dealing with a pretty tough issue too...Very sick toddler, but...when your a mama, even when your a grandma, you do whatever it takes. Do we tire...? Do we catch ourselves, one more time Wishing for ANY improvement so it won't be so hard...? YES YES YES.....lolol.....I feel for your mama, I truly do. This whole grandma thing...I know it's hard on you Jackie, I promise, I know.....but Diane...I have to say, it's tough, watching MY baby, sitting in the rocking chair crying, holding Her baby that is exhausted and squalling for pushing 6 hours.....It SUCKS. Sometimes I wanna shake the Pediatrician who dropped the ball, not 1 or twice, but FOUR times.....the ER that sent a seriously ill baby out of there with NO treatment...It's tough. So while we don't deal with the issues Beautiful Gesina does...Just know Jackie, that all of us ARE suffering along with you. It' so hard, watching our babies struggle to find balance with sick babies:(
ReplyDeleteYou're doing great. WHAT EVER YOU FEEL IS OKAY. Let me repeat this one more time, WHAT EVER YOU FEEL IS OKAY. They are YOUR struggles, your anger, your pain. And you know what....? That's okay. Cause at the end of EVERY DAY, you know You're doing what it takes. And that, My awesome new mother, is what it's all about...huggzzz