Here's a pic of Gesina sitting upright... She is definitely a chip off the old block as I commandeer the lazy boy in my house, and I got that from my dad. Of course, my dad would kick me out of his lazy boy and so far, I haven't done that to Gesina. Though I can absolutely see me yelling at her to bring me something from the fridge in the future ;-)
Next up I am hoping that upping her Prilosec will get the vomiting under control. Even sick, Gesina has gained a pound in one month which is the upper end of what she needed to do. The being sick all of the time has impeded progress on therapy and "inchstones". I'm trying to incorporate sitting up as much as I can to help build up her muscles but tummy time is pretty much impossible. When your baby vomits 3-5 times a day and in large quantities, she ends up sitting up the whole day. The only time she is not sitting up is during clothing and diaper changes. There is no time for her to be horizontal and in fact, she mainly vomits while sitting up (on me of course). Either way, when we get that under control, back to brushing therapy and tummy time.
While we wait, wish me luck; Gesina and I are going on a road trip to see papa play fastpitch at nationals. Three and a half hours in a car with a baby who is only happy being held and vomits quite frequently may do me in. But alas, I'm a problem-solver and I'm going to bring ear plugs :-)
I love that picture, I am glad you posted it. Good luck on the trip, you might have to stop a few times:) Hopefully they will get the acid reflux under control soon so you can continue with her therapy.
ReplyDeleteIn the off-chance no one explained it to you, a g-tube (gastroscomy tube) is very different from the n-g tube (nasogastric tube) you used before. The g tube does not go into the nose. it is placed by the doctor into a tiny hole near the belly button. This typically is taped down, and children are less likely to touch them as compared to ng tubes that bother their face. Often, they are unaware of the g tube altogether. Then, when the child no longer needs it, the doctor removes it, and the little hole closes up nicely. Clearly, a child who is drinking only 20 ounces can't afford to vomit up entire bottles for very long, so you might find the g tube to be a better solution that brings peace and comfort to you bout and that doesnt require the awful struggles you had with the n-g tube. You might try it, and if you don't like it, ask the doctor to take it out.
ReplyDeleteActually, sitting up is better for brain development than lying horizontally.
ReplyDeleteSometimes we mamas have to do what WE know is best. Dr's, nurses & therapist only see records and the patient ONCE every so many months. They aren't there for the 3 am issues or the afternoon dramas. Keep up the good work, you're doin' what NEEDS to be done. Keep lovin' her, keep focusing on your accomplishments...Mommy is more than a word...there isn't enough education in this entire world, to truly prepare a mama. We learn with every child, every issue and every tear:)
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