My poor girl has experienced pain this year. The year has included teething where she has felt EVERY SINGLE TOOTH come in, numerous hospital stays with difficulty breathing as every cold threatens to get stuck in her lungs, plus, weaning off these meds is more difficult than you can imagine because she gets most of the withdrawal symptoms. With all that said, she has been "waking up" as she comes off these sedating seizure meds and she SMILES a lot. She hasn't laughed since her first time last year but if she isn't sick or going through withdrawal, she is smiling and happy. She had strings of good happy days where she babbles, is great with her therapy, and is fun to be around. When things go bad, she won't do therapy and demands to be held at all times. I get hungry stuck to my chair cuddling her, but I'm so thankful that she's here and is a cuddler! Here's her year 2 Birthday montage, enjoy!
Tuesday, December 8, 2015
Gesina is 2 years old!
She was predicted to not get this far by at least two doctors... silly doctors. Gesina has been seizure free since February. Don't get me wrong, she has moments of "odd" neurological behaviors, but nothing I or her neurologist would call a seizure. She is no longer on Phenobarbital and is one month away from being free of Clonazepam! This scares me as just saying this all out loud, seems like I'll jinx it but there it is. But she is keeping it together and will be down to only 1 seizure med, gulp.
My poor girl has experienced pain this year. The year has included teething where she has felt EVERY SINGLE TOOTH come in, numerous hospital stays with difficulty breathing as every cold threatens to get stuck in her lungs, plus, weaning off these meds is more difficult than you can imagine because she gets most of the withdrawal symptoms. With all that said, she has been "waking up" as she comes off these sedating seizure meds and she SMILES a lot. She hasn't laughed since her first time last year but if she isn't sick or going through withdrawal, she is smiling and happy. She had strings of good happy days where she babbles, is great with her therapy, and is fun to be around. When things go bad, she won't do therapy and demands to be held at all times. I get hungry stuck to my chair cuddling her, but I'm so thankful that she's here and is a cuddler! Here's her year 2 Birthday montage, enjoy!
My poor girl has experienced pain this year. The year has included teething where she has felt EVERY SINGLE TOOTH come in, numerous hospital stays with difficulty breathing as every cold threatens to get stuck in her lungs, plus, weaning off these meds is more difficult than you can imagine because she gets most of the withdrawal symptoms. With all that said, she has been "waking up" as she comes off these sedating seizure meds and she SMILES a lot. She hasn't laughed since her first time last year but if she isn't sick or going through withdrawal, she is smiling and happy. She had strings of good happy days where she babbles, is great with her therapy, and is fun to be around. When things go bad, she won't do therapy and demands to be held at all times. I get hungry stuck to my chair cuddling her, but I'm so thankful that she's here and is a cuddler! Here's her year 2 Birthday montage, enjoy!
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